Madokotala Ochita Opaleshoni ya CHOP Alekanitsa Amapasa Olumikizana Omwe Ali Kwawo Tsopano

Written by mkonzi

Patatha pafupifupi chaka chimodzi ali m'chipatala cha Ana ku Philadelphia (CHOP), mapasa a miyezi 10 olumikizana Addison (Addy) ndi Lilianna (Lily) Altobelli adasiyanitsidwa bwino ndi maopaleshoni a CHOP pa Okutobala 13, 2021. Tsopano kwathu ku Chicago, atsikanawo anabadwa ogwirizana pamimba ndi pachifuwa, matenda otchedwa thoraco-omphalopagus mapasa, kutanthauza kuti amagawana chiwindi, diaphragm, chifuwa ndi khoma la m'mimba.

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Gulu la opaleshoni lomwe linaphatikizapo akatswiri oposa 10, kuphatikizapo maopaleshoni akuluakulu, ogonetsa anthu, madokotala ochita opaleshoni, dokotala wa opaleshoni ya mtima, ndi maopaleshoni apulasitiki, anathera pafupifupi maola XNUMX kulekanitsa atsikanawo. Amapasawo atapatukana, gulu lochita opaleshoni linagaŵana pawiri n’kumanganso chifuwa ndi khoma lamimba la mtsikana aliyense, pogwiritsa ntchito mauna ndi njira za opaleshoni yapulasitiki kuti khanda lililonse likhale lokhazikika.

"Kulekanitsa mapasa ophatikizana nthawi zonse kumakhala kovuta chifukwa mapasa aliwonse ndi apadera, ndipo onse ali ndi zovuta zosiyana ndi malingaliro a anatomic," anatero dokotala wamkulu wa opaleshoni Holly L. Hedrick, MD, dokotala wa opaleshoni ya ana ndi mwana mu Division of Pediatric General. , Opaleshoni ya Thoracic ndi Fetal ku Chipatala cha Ana ku Philadelphia. "Mmene gulu lathu limagwirira ntchito limodzi, ndizodabwitsa komanso zapadera, chifukwa anthu ambiri amabwera palimodzi kuti akwaniritse cholinga chimodzi. Addy ndi Lily akuchita bwino, ndipo chiyembekezo chathu n’chakuti adzakhala ndi moyo wosangalala.”

Kuyambira Kuzindikira Kufikira Kutumiza

Ulendo wa Addy ndi Lily unayamba pamene adapezeka kuti ali ndi pakati pa masabata 20 a ultrasound. Asanakhazikitsidwe, makolo Maggie ndi Dom Altobelli adaganiza kuti ali ndi mwana m'modzi, koma chithunzi cha ultrasound chidawonetsa kuti Maggie sanangonyamula ana awiri okha, koma adalumikizidwanso pamimba.

Amapasa olumikizana ndi osowa, amapezeka mwa mwana mmodzi yekha mwa obadwa 1. Awiriwa adawatumiza ku CHOP kuti akawunikenso, chifukwa chipatalachi ndi chimodzi mwa ochepa mdziko muno omwe ali ndi chidziwitso cholekanitsa amapasa olumikizana. Opitilira 50,000 amapasa olumikizana adalekanitsidwa ku CHOP kuyambira 28, chipatala chochuluka kwambiri mdziko muno.

Awiriwa adakumana ndi akatswiri a CHOP's Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment, komwe Maggie adayezetsa kwambiri asanabadwe kuti adziwe ngati kunali kotheka kulekanitsa mapasawo, kutengera kulumikizana kwawo komanso kugawana thupi. Madokotala anapeza kuti ngakhale kuti atsikanawo anali ndi mtima wofanana pachifuwa ndi m’mimba, m’mimba komanso m’chiwindi, mapasawo anali ndi mitima yosiyana komanso yathanzi. Chiwindi chawo chogawana nawo chinalinso chachikulu mokwanira kuti chigawike pakati pawo, kuwapanga kukhala abwino kwambiri opangira opaleshoni yolekanitsa.

Pambuyo pa miyezi yokonzekera kubereka kwachiwopsezo chachikulu kudzera pagawo la C, motsogozedwa ndi Julie S. Moldenhauer, MD, Mtsogoleri wa Obstetrical Services, Addy ndi Lily adabadwa pa Novembara 18, 2020 ku Garbose Family Special Delivery Unit (SDU), Gawo la CHOP loperekera odwala ogona. Anakhala miyezi inayi mu Newborn/Infant Intensive Care Unit (N/IICU), yotsatiridwa ndi miyezi isanu ndi umodzi mu Pediatric Intensive Care Unit (PICU). Dokotala wa opaleshoni ya pulasitiki ya CHOP David W. Low, MD, anaika zowonjezera khungu kuti atambasule khungu la atsikana pokonzekera opaleshoni yolekanitsa. Mofanana ndi mabaluni ang’onoang’ono, otha kupindika, zokulitsa khungu zimakula pang’onopang’ono kudzera mu jakisoni, kutambasula khungu pang’onopang’ono m’kupita kwa nthaŵi kotero kuti msungwana aliyense akhale ndi khungu lokwanira kuphimba khoma la pachifuwa ndi mimba yake yowonekera pambuyo pa kulekana.

Opaleshoni Yovuta Kwambiri

Pamene mapasawo anali okhazikika ndipo panali khungu lokwanira lokwanira kuphimba pambuyo pa kupatukana, anali okonzeka kuchitidwa opaleshoni. Patangotha ​​mwezi umodzi kuti opareshoni ichitike, gulu lochita opaleshoni linkakumana mlungu uliwonse, n’kumapenda zithunzi za ultrasound mobwerezabwereza kuti lifufuze mmene magazi amalowa m’chiŵindi cha atsikanawo, kuti athe kudziwa mmene magaziwo akuyendera komanso kumene mitsempha ya atsikanawo imadutsa. Akatswiri a radiology a CHOP adapanga zitsanzo za 3D, zomwe zinayikidwa pamodzi ngati zidutswa za Lego®, kuti gulu la opaleshoni limvetsetse ubale wa anatomy omwe amagawana nawo atsikana ndikuchita opaleshoniyo pochita masewera olimbitsa thupi, monga mavalidwe a tsiku la opaleshoni.

Pa Okutobala 13, 2021, atatha miyezi yokonzekera, Addy ndi Lily adachitidwa opareshoni ya maola 10 ndipo adapatulidwa nthawi ya 2:38 pm Radiology inalipo panthawi ya opareshoni kuti afotokoze zachiwindi chofunikira kwambiri ndi ultrasound. Atsikanawo atapatukana, gulu lochita opaleshoni linagawanika pawiri ndipo linayamba kugwira ntchito yolimbikitsa mtsikana aliyense ndi kumanganso khoma la chifuwa ndi pamimba pake. Stephanie Fuller, MD, dokotala wa opaleshoni ya mtima, analumikiza patent ductus arteriosus ya atsikana ndipo anaonetsetsa kuti mitima ya atsikana onse ili pamalo abwino komanso ikugwira ntchito bwino. Madokotala ochita opaleshoni apulasitiki anaika zigawo ziwiri za mesh - imodzi yosakhalitsa, imodzi yokhazikika - pamwamba pa mapasa a pamimba ndi pachifuwa makoma a mapasawo ndikuphimba ndi khungu lomwe linali litatambasulidwa kwa miyezi yambiri pamene atsikanawo anali ku PICU. 

Atsikanawo atatuluka opaleshoni, Maggie ndi Dom anaona ana awo aakazi atapatukana koyamba.

"Kuwawona ndi matupi awo - matupi awo anali angwiro - zinali zodabwitsa," adatero Maggie. "Zinali zosafotokozeka."

Kunyumba kwa Tchuthi

Pa Disembala 1, 2021, a Altobellis pomaliza adawulukira kwawo ku Chicago - mapasa amodzi panthawi, ali ndi kholo limodzi - atakhala ku Philadelphia kwa nthawi yopitilira chaka. Amapasawa adakhala milungu iwiri ku Lurie Children's Hospital moyang'aniridwa ndi gulu lachipatala lomwe liziwathandiza kufupi ndi kwawo. Atsikanawa adatulutsidwa m'nthawi ya Khrisimasi ndipo adafika kunyumba ndikupeza bwalo lawo litakongoletsedwa ndi anansi awo. Holideyo anathera limodzi kunyumba monga banja la ana anayi.

Addy ndi Lily onse akadali ndi machubu a tracheostomy ndi ma ventilator kuti awathandize kupuma, chifukwa adzafunika nthawi kuti apange minofu ndikusintha kupuma okha. M'kupita kwa nthawi, adzasiya kuyamwa pa makina opangira mpweya.

"Tikuyamba buku latsopano - simutu watsopano, ndi buku latsopano," adatero Dom. "Tinayambitsa buku latsopano la atsikana, ndipo pali buku la Addy, komanso buku la Lily."

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mkonzi

Mkonzi wamkulu wa eTurboNew ndi Linda Hohnholz. Amakhala ku eTN HQ ku Honolulu, Hawaii.

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